Page Ideas: 🌱 “Our Beginning” pages Baby’s name (and what it means) Date and time of birth Gestational age and weight at birth A photo of baby’s first footprint or handprint (if available) “The day we met you” reflection page 🏥 NICU milestones (big and small!) Encourage parents to celebrate every  win: First time holding hands First kangaroo care First outfit or hat First bath Coming off a ventilator or CPAP Moving from isolette to crib First bottle or breastfeeding attempt

Check out TheNICUworld.com shop for all your NICU needs. Coming soon- a unique, soft, comfortable shirt specially designed for doing skin to skin with your preterm infant in the NICU. Email us at TheNICUWorld@gmail.com if you want more information and the chance to preorder.

The ABCs of Safe Sleep A = Alone Baby sleeps alone in their own space  (crib, bassinet, or play yard) No pillows, blankets, stuffed animals, bumpers, or positioners B = On Their Back Always place your baby on their back  for every sleep—naps and nighttime This is the single most important way to reduce the risk of SIDS C = In a Crib (or bassinet/play yard) Use a firm, flat mattress  with a tight-fitting sheet only The sleep space should meet current safety standards Room-shar

Here’s why limiting frequent disturbances matters: 🧠 Brain and nervous system development Preterm babies’ brains are still developing rapidly. Sleep and quiet rest help: brain growth and wiring of the neurons in the brain sensory development- how they process their environment regulation of stress hormones Frequent waking, bright lights, and handling can overstimulate an immature nervous system. ❤️‍🩹 Protecting fragile bodies Preterm infants use a lot of energy just to: bre

Having a baby in the NICU is hard. It is common for parents to describe it as one of the most stressful times of their lives. If you are feeling overwhelmed, anxious, sad, or numb — you are not alone. Why the NICU can feel traumatic Trauma is not only about what medically happened. Trauma can come from: fearing your baby might not be okay seeing your baby connected to tubes or monitors hearing alarms and watching procedures being separated from your baby losing the “normal” b

What is pre-eclampsia? Pre-eclampsia is a condition that happens during pregnancy where the mother’s blood pressure becomes high and some organs—often the kidneys or liver—are affected. It isn’t anyone’s fault. It is related to how the placenta (the organ that connects mom and baby) develops and how blood flows through it. Why does it matter? High blood pressure and placenta problems can make it harder for the baby to get enough oxygen and nutrients. It can also make the moth

💡 Helpful ways NICU parents can use AI 1) Understand medical terms and conditions translate medical language into plain English explain acronyms (BPD, CPAP, TPN, NEC, etc.) summarize general information about a diagnosis or procedure “Explain PDA to me like I’m not medical, and in 5 sentences.” 2) Prepare for conversations with the care team draft questions for rounds or a family meeting organize what you want to say when overwhelmed role-play how to ask hard questions “Help

IVH stands for intraventricular hemorrhage, which means bleeding inside the brain, in the fluid-filled spaces called the ventricles. This type of bleeding happens mostly in very premature babies, especially those born before about 32 weeks, because their brains are still very delicate. Why does it happen? Inside the brain of a preterm baby is an area called the germinal matrix.This area has: Very fragile blood vessels A lot of blood flow Less protection than a full-term baby’

Betamethasone is given before  a preterm baby is born, but its benefits continue after birth , improving outcomes in several important ways. Here’s how it helps once the baby is delivered: ⭐ Key Ways Betamethasone Helps Preterm Babies After  Birth I mproves lung function and reduces RDS Betamethasone accelerates fetal lung maturation. After birth, this leads to: More surfactant production Better lung compliance Less severe respiratory distress syndrome (RDS) Lower need for i

Neonatal therapists play a key role in supporting the development, comfort, and feeding skills  of babies in the NICU. The team usually includes occupational therapists (OTs), physical therapists (PTs), and speech-language pathologists (SLPs) —each with specialized training in premature and medically fragile infants. Here’s what they do: ⭐ 1. Support Neurodevelopment Neonatal therapists help protect and optimize brain development during a period when the NICU environment can

"C" shape position for hand expression 1. Get Ready Wash your hands thoroughly with warm soapy water for at least 20 seconds. Have a clean container ready, preferably one with a wide opening to catch the milk as it may squirt out. Many parents find it helpful to gently massage the breast first before starting for 1-2 minutes. You may even want to gently tug on the nipple to mimic your baby breast feeding. 2. Position Your Hand Use the C-hold : Your fingers and thumb should

Understanding Apnea of Prematurity: Why Does My Baby Sometimes “Forget” to Breathe? If your baby was born early, you may have heard the term “apnea of prematurity.”  It can be frightening to see your baby pause their breathing or to hear monitors alarm, but this is a very common and usually temporary  part of being premature. What Is Apnea of Prematurity? “Apnea” means a pause in breathing. In preterm babies, apnea of prematurity refers to a pause in breathing that lasts for

Why Does My Preterm Baby’s Breastmilk Need Fortification? If your baby was born prematurely, you may have heard that their breastmilk will be fortified  — that extra nutrients are added before it’s given to your baby. Many parents are surprised by this and wonder, “Isn’t breastmilk enough?” It’s a great question — and the answer comes down to what makes preterm babies’ nutritional needs unique. Breastmilk Is the Best Start Breastmilk is an incredible, living substance — full

Why Can’t My Baby Feed by Mouth Yet? Understanding NG Feeding in Preterm Infants One of the most common questions parents of preterm babies ask is, “Why can’t my baby just eat by mouth?”  Watching your baby receive milk through a tiny tube in their nose (called a nasogastric or NG tube) can feel concerning — but it’s actually a normal and important part of helping preterm infants grow safely. Feeding Is a Complex Skill Feeding may look simple, but it actually requires the coo

Listen without judgment.  Sometimes they just need someone to sit and hear them out. Check in regularly.  A simple “thinking of you” text...

When a baby is born with Down syndrome, it’s natural to have many questions about what this means for your child. Every baby is unique,...

For preterm babies, weight gain is one of the best signs that they’re growing well. The exact amount depends on the baby’s gestational...

With CDH, a hole in the diaphragm allows abdominal organs to move into the chest during fetal development. There, they can crowd the...

Oral immune therapy, or sometimes referred to "OIT" is a way to help protect premature babies by giving them very small amounts of their...

Retinopathy of prematurity, or ROP, is an eye condition that can happen in premature babies. When babies are born early, the blood...